Nepali Times
Health
A care in time


PAAVAN MATHEMA


MARCUS BENIGNO

Dipak Kayastha carefully adds 12 plus 34 and writes 46 in his workbook. Ask him his age, and he'll smile and signal '16'. Surprisingly, two years ago cerebral palsy patient Dipak had difficulty communicating his needs. Today, he's one of the many success stories at the Patan Community-based Rehabilitation (CBR) centre.

Established in 1995, Patan CBR is the only institution of its kind that serves children with neurological development disabilities, caring for over 60 children. "Sixty per cent of the cases we deal with are autism related," explains Rajesh Bajracharya. "Others have cerebral palsy and Down syndrome, and some children have multiple conditions."

With an open-door policy, the centre admits and assesses new students regardless of their age and condition. "Each child is different so we have to formulate a customised individual plans," explains teacher Kabita Shrestha. In addition to formal education, the centre focuses on Physiotherapy, speech training and socialisation.

The classes are designed to help students develop their physical and cognitive abilities as well as build self-esteem. In a vocational training class, candles, artificial flowers, incense and decorative items are handmade by the students.
"Our children's progress is not simple as going from Class 1 to 2, but is a continuous process of learning," Shrestha adds. What is heartening is that many of the centre's former students are now studying in mainstream schools.

Patan CBR was also involved in providing door-to-door assessments of children in Kathmandu, Lalitpur and Nuwakot districts, which found that over 4.5 per cent of the population suffers from some form of disability. The centre has registered more than 1,700 children, and has trained their guardians in disability care. However, this work has been hampered by a lack of funds.

The centre charges only a minimum fee for enrollment and collects funds by renting out its physiotherapy facilities and selling handcrafts made by the students, while the government pays four teachers and a helper.

"Our cost is high because our children need constant monitoring by trained staff," says Moti Shanti Shakya, President of the centre. "Our efforts are also directed towards raising awareness because a lot of these cases can be prevented or improved."

Sunita Maleku Amatya of Autism Care Nepal agrees: "Early intervention, diagnosis and treatment can have a life changing effect on children with autism, or any other neurological disability."
www.patancbr.org


A different kind of shop

Take the road opposite to the Lalitpur Metropolitian Office to head towards Patan Dhoka, and you notice a new store has opened: Yaka Enterprise. It sells mobiles, mobile accessories and recharge cards. It also offers mobile repair services, computer typing in Nepali and English and printing services, and is run by Sudan Tandukar and Mahish Maharjan. Why is Yaka Enterprise different? Sudan is sight impaired while Manish suffers from arthritis, but this doesn't stop them from carrying on their work in the shop. "This is to show that employment of differently-abled people is possible," says shop owner, Rajesh Bajracharya. "Their financial independence will allow them to demand social respect, instead of sympathy."

See also:
Coming of AGE, CLARE HARVEY



1. Naresh Neupane
I cherish your piece -- as always.
Independence and respect, not sympathy, is what these people want.
Your effort to cover their concerns will not be forgotten.
I also resent some -- some really concerned with democracy and peace in Nepal and having funds to profit from their business like private colleges, schools, media, NGOs....--to  which they believe their service to the motherland.
I wish they had conscience like yours.



LATEST ISSUE
638
(11 JAN 2013 - 17 JAN 2013)


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